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Darren visits Bristol Royal Hospital for Children

Bristol North West MP, Darren Jones, made an educational visit to Bristol Royal Hospital for Children (BRHC) today (28th September) to gain a wider insight into paediatric palliative care.

Darren met with the palliative care and bereavement support team at Bristol Royal Hospital for Children to talk about the team’s key roles at the hospital and the delivery of palliative care locally and regionally.

Here’s what Darren said:

I was delighted to visit the Bristol Royal Hospital for Children. The work of the palliative care and bereavement support team is crucial in supporting children and their families at the most difficult of times. I was impressed by the dedication, skill and empathy of this small but vital team, and I have come away from my visit with greater knowledge and understanding about the hospital’s work.

Francis Edwards, paediatric palliative care liaison nurse at BRHC, said: “We were delighted to welcome Darren to the hospital, and discuss with him aspects of family care and the issues they face both in hospital and the community.

“It was important for us to highlight the Together for Short Lives Core Pathway for children with life-limiting and life-threatening conditions, which starts at the point of recognition or diagnosis, often in one of the UK’s children’s hospitals, and continues from that point into bereavement. I explained to Darren how the whole pathway can rollover many years for families and how we have been involved in localising the pathway and how families will spend a great deal of time in the acute sector of which there is little understanding about this stage of their palliative care journey.

“We want to thank Darren for taking the time to visit the hospital and our teams.”