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Darren welcomes Cystic Fibrosis breakthrough

MP for Bristol North West, Darren Jones has welcomed news that a deal has been agreed between Vertex Pharmaceuticals and the NHS to supply revolutionary drugs Orkambi and Symkevi to people with cystic fibrosis.

Following multiple communications supported by Darren last year, the MP had co-signed new letters in July (available below) to Vertex Pharmaceuticals and the Secretary of State for Health and Social, Matt Hancock,  requesting both parties urgently sit down together and resolve the negotiations regards Orkambi so those with cystic fibrosis can have access to this revolutionary drug.

Darren said:

“After 4 years of hard work from Labour MPs and cystic fibrosis (CF) campaign groups and charities an agreement has finally been reached for these life-saving drugs to be available to people in the UK.

Median life expectancy for someone with CF is just 47 – in the context of that stark figure four years was harrowingly long to wait – I am glad that wait is now over and these drugs will be available within a matter of weeks.

Whilst I’m delighted with today’s (24 10 19) announcement, the 10,400 people with Cystic Fibrosis in the UK should not have been keep waiting 4-years for this vital treatment to be available.

I thank NHS England and Vertex Pharmaceuticals for finally agreeing a deal that is fair to the NHS”.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

You can find out more about Cystic Fibrosis and the support available here.