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Darren continues to fight for Cystic Fibrosis patients

MP for Bristol North West, Darren Jones has continued to fight for access to Orkambi for the 10,400 people with Cystic Fibrosis in the UK.

Darren has co-signed another letter to Vertex Pharmaceuticals (the first was sent on 28th June 2018) – this letter asks the company to urgently sit down with, and resolve, the negotiations with NHS England so those with cystic fibrosis can have access to this revolutionary drug.

Darren said:

“Cystic Fibrosis is a cruel and life-shortening condition – it is unacceptable this drug has been licensed for over three years yet it is still not available for the people that sorely need it. Median life expectancy for someone with CF is just 47 – in the context of that stark figure three years is far too long and time is being wasted. People with Cystic Fibrosis should not have to keep waiting for this treatment to be available.

NHS England and Vertex need to sit down as a matter of the strongest urgency and sort this out and the government should be facilitating that discussion. These delays are causing unnecessary suffering to my constituents and thousands across the country”.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

You can find out more about Cystic Fibrosis and the support available here.

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